wkms: : 'Mermaid Girl' Shiloh Pepin Dies At 10 (2009-10-24)

PEOPLE

'Mermaid Girl' Shiloh Pepin Dies At 10

Shiloh Pepin, who was born with a rare condition often called "mermaid syndrome," was featured in the TLC documentary Mermaid Girl, told her story on Oprah and gained a wide following on the Internet. Doctors didn't expect her to live long after she was born. She died Friday afternoon. by The Associated Press Shiloh Pepin, who was born with a rare condition often called "mermaid syndrome" and gained a wide following on the Internet and national television, has died. She was 10.

Doctors had predicted she would survive for just days after her birth at the most. Instead, the girl, described by her mother earlier this week as "a tough little thing," died at Maine Medical Center on Friday afternoon, hospital spokesman John Lamb said. She had been hospitalized in critical condition for nearly a week.

Being born with sirenomelia meant that the Kennebunkport girl had only one partially working kidney, no lower colon or genital organs and legs fused from the waist down.

Some children who have survived sirenomelia have had surgery to separate their legs, but Shiloh did not because blood vessels crossing from side to side in her circulatory system would have been severed. She had received two kidney transplants, the last one in 2007.

Her story was featured recently on The Oprah Winfrey Show and other national television programs. A documentary about her has aired on TLC.

Earlier this month, her mother, Leslie Pepin, said her daughter came down with a cold that quickly turned to pneumonia. Shiloh was rushed to Maine Medical Center on Oct. 10 and was placed on antibiotics and a ventilator.

For a while, Leslie Pepin said, things were looking up.

Shiloh was a fifth-grader at Kennebunkport Consolidated School.

"She was such a shining personality in that building," said Maureen King, chairwoman of the board of the regional school district. Counselors will be available next week to talk to students.

Through the television shows, news articles and Facebook and other Web sites, Shiloh inspired many.

"I live in Iowa. I have cerebral palsy. I love your video," 12-year-old Lydia Dawley wrote to Shiloh on Facebook. "You have a great personality. I wish you lived close so we could be friends and hang out. You opened my eyes because you are so brave." Copyright 2009 The Associated Press. To see more, visit http://www.ap.org/.